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draconis · 11-06-2007, 07:45 PM

The Revelation

Revelation ~ the revealing of something previously hidden or secret.

For people that know me or are on my myspace they know I am physically disabled.

Disabled ~ unable to perform particular activities: describes somebody with a condition that makes it difficult to perform some or all of the basic tasks of daily life

How would you cope? A thread I started on a forum wasn’t a just because. I described me. From another perspective I wanted to see what my wife might be going through on the days when I just can’t do what I want to do.

For those that chat with me they know that I have a rare form of Muscular Dystrophy. It is actually the rarest form but not the most deadly. I have suffered from the loss of income, and depression from not being able to do all the things I want to do. Right down to losing weight.

Losing weight has been one of the hardest things. For me to function I have a high Carbohydrate diet. Of course you have to eat extremely healthy to not put on weight. Still you crave other foods. I only eat meat 3 times a week. I have to watch the starch foods and worry about Diabetes (which my father has.)

From my wife to my friends all haven’t know how to handle a crippled friend. Not that they treat me bad rather I have most of my friends are the most respectable people you’d ever meet by far. But most don’t get I can’t always do what I want and struggle with some of the simplest things.

Holding small objects is an issue for me. I drop stuff often through no fault of my own yet people think of me as clumsy. Having spent my younger years in karate I never was without dexterity, until now.

The onset of the MD has been slow enough for me to handle most aspects. I hope that given time my wife will continue to stay by my side and help me through the changes. Knowing her I have no doubt she will. But as I can’t expect her to understand everything I have to deal with I know I will not see everything she has to deal with either.

So the post added for me some insight. I marvel at her adaptation so far.

She is still getting use to the idea I now have leg braces to add to my typical stuff (back brace, arm crutch, TENS unit and to many medications.)

For all that replied I want to thank you. I know my side. Now I see a bit more of hers.

draconis

11-06-2007, 07:45 PM	#1 (permalink)
draconis Forum Supporter Join Date: Oct 2007 Location: North East Posts: 2,903	The Revelation The Revelation Revelation ~ the revealing of something previously hidden or secret. For people that know me or are on my myspace they know I am physically disabled. Disabled ~ unable to perform particular activities: describes somebody with a condition that makes it difficult to perform some or all of the basic tasks of daily life How would you cope? A thread I started on a forum wasn’t a just because. I described me. From another perspective I wanted to see what my wife might be going through on the days when I just can’t do what I want to do. For those that chat with me they know that I have a rare form of Muscular Dystrophy. It is actually the rarest form but not the most deadly. I have suffered from the loss of income, and depression from not being able to do all the things I want to do. Right down to losing weight. Losing weight has been one of the hardest things. For me to function I have a high Carbohydrate diet. Of course you have to eat extremely healthy to not put on weight. Still you crave other foods. I only eat meat 3 times a week. I have to watch the starch foods and worry about Diabetes (which my father has.) From my wife to my friends all haven’t know how to handle a crippled friend. Not that they treat me bad rather I have most of my friends are the most respectable people you’d ever meet by far. But most don’t get I can’t always do what I want and struggle with some of the simplest things. Holding small objects is an issue for me. I drop stuff often through no fault of my own yet people think of me as clumsy. Having spent my younger years in karate I never was without dexterity, until now. The onset of the MD has been slow enough for me to handle most aspects. I hope that given time my wife will continue to stay by my side and help me through the changes. Knowing her I have no doubt she will. But as I can’t expect her to understand everything I have to deal with I know I will not see everything she has to deal with either. So the post added for me some insight. I marvel at her adaptation so far. She is still getting use to the idea I now have leg braces to add to my typical stuff (back brace, arm crutch, TENS unit and to many medications.) For all that replied I want to thank you. I know my side. Now I see a bit more of hers. draconis