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post #91 of 241 (permalink) Old 01-26-2014, 12:42 PM
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Re: Kenji's journey

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Originally Posted by 2ntnuf View Post
If he has thoughts he can't let go, it may have to be something that makes him think, not just the sound of water or something. That's what I was meaning by, "white noise". It still makes me think a little, but much less. It's just enough to keep me from thinking of the things I don't want.
I'm the same way. I can't just listen to the sound of rain or something; I have to listen to a story of some kind. Something relaxing but interesting enough to stop me from thinking/worrying.

Thank you for sharing your story, drerio. I don't have anything to contribute, but like everyone else here, I care about you and your wife and the boys. Thank you for letting us know what's happening.

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post #92 of 241 (permalink) Old 01-26-2014, 12:52 PM Thread Starter
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Kenji's journey

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I'm the same way. I can't just listen to the sound of rain or something; I have to listen to a story of some kind. Something relaxing but interesting enough to stop me from thinking/worrying.



Thank you for sharing your story, drerio. I don't have anything to contribute, but like everyone else here, I care about you and your wife and the boys. Thank you for letting us know what's happening.

Thank you
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post #93 of 241 (permalink) Old 01-26-2014, 08:42 PM
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Re: Kenji's journey

I, too, want to join with the others here and say I think you and Mrs. D are very amazing people. Kenji and Ryo couldn't have made it this far without the two of you, so don't ever doubt that they need you, and that you're the best for them. I'm keeping all of you in my thoughts. ((hugs))

I'm undecided on which pants to wear today -- smarty, fancy or sassy?
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post #94 of 241 (permalink) Old 01-26-2014, 09:20 PM Thread Starter
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Re: Kenji's journey

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I, too, want to join with the others here and say I think you and Mrs. D are very amazing people. Kenji and Ryo couldn't have made it this far without the two of you, so don't ever doubt that they need you, and that you're the best for them. I'm keeping all of you in my thoughts. ((hugs))
Thank you
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post #95 of 241 (permalink) Old 01-28-2014, 11:59 AM Thread Starter
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Re: Kenji's journey

A couple things we are going to try:

We are making plans to move toward a eating a gluten free diet. I know that there is much debate as to whether there is any real connection between one's mental state of mind and diet. There is lack of any strong scientific study that has made the connection. I have perused the literature in great detail on the subject. However, what I do think is that gluten or foods that contain a lot of gluten changes our gut microflora. In light of that, there is increasing evidence that our general health and possibly even mental health may be linked to the bacteria that inhibit our gut. So we also plan on supplementing this diet with probiotics. As a side note, Kenji has always had difficult with bowel movements along with low muscle tone and of course his ASD. Are these symptoms and conditions related? It is so hard to make direct correlation, but even as a person who lives by experiential evidence, I can't ignore what I observe. We hope that this at least helps with his sleep. Kenji has never expressed that stomach irritations keep him awake at night or even wake him up in the middle of the night. But, even that alone is not reliable since he has some deficit in clearly expressing himself.

We have have set up a regular exercise regime for him to carry out everyday. Some days will include lifting weights with me. Other days will be a vigorous 15 minute workout. There is no doubt in my mind that many of the stimulations associated with consistent exercise diet will help with his sleep and hopefully better mental regulation. He shows some reluctance in wanting to exercise, but once he starts into it, he is ok with carrying out the task. I promised him and Keiko that I will not go "drill Sergeant" on him.

I will keep you up to speed on his progress as we start down this new path.

This will not replace all the things we currently are doing with him.
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post #96 of 241 (permalink) Old 01-28-2014, 12:00 PM
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Re: Kenji's journey

Exercise is a great idea Plus it will be a fun activity to do together.
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post #97 of 241 (permalink) Old 01-28-2014, 12:14 PM Thread Starter
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Re: Kenji's journey

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Exercise is a great idea Plus it will be a fun activity to do together.
Plus, I might as well get a better gain for my in-home gym investment.

Thank you
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post #98 of 241 (permalink) Old 01-28-2014, 12:29 PM
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Re: Kenji's journey

Maybe he's older but, many recomend a trampoline for children with ASD.
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post #99 of 241 (permalink) Old 01-28-2014, 12:33 PM Thread Starter
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Re: Kenji's journey

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Maybe he's older but, many recomend a trampoline for children with ASD.
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What he wants and I may be able to accommodate him given that I know have a power cage system, a punching bag.


Allow him the opportunity to punch out his frustrations with the understanding that this is to only be done on a bag and not on another person. He said, "I know".
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post #100 of 241 (permalink) Old 01-28-2014, 12:35 PM
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Re: Kenji's journey

The gluten free diet worked very well for us, my son was less constipated and better skin. He was also less hyper. But he lost wight and was underweight all that time.
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post #101 of 241 (permalink) Old 01-28-2014, 01:00 PM
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Re: Kenji's journey

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The gluten free diet worked very well for us, my son was less constipated and better skin. He was also less hyper. But he lost wight and was underweight all that time.
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I would post where I read this, if I could remember. This is quite true with gluten-free or low gluten diets. I don't know for certain if that was a problem or how it was countered. I'm sorry, drerio. I think it was on some health site. Men's health? Dang, I wish I could remember, d. I just don't want you to be surprised.

"I'm significant!! Screamed the dust speck." - Bill Watterson

"And this, too, shall pass away."
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post #102 of 241 (permalink) Old 01-29-2014, 10:47 AM
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Re: Kenji's journey

Have you considered yoga as part of Kenji's regimen? I haven't seen any studies on it with ASD or kids with other sensory integration problems, but it might be something to consider. In particular, I'm thinking that it could be part of his toolbox to self-soothe. Ideas like connecting body to breath when he's anxious. I've even read about people that will use yoga to cue body responses to stress. Not that they break out into Tree Pose when deadlines loom or anything, but they find grounding and focus by say, putting their feet at the same angles they do for Warrior Pose before speaking in public.

Given that Kenji is used to physical outlets for anxiety and stress already, it might be an interesting tool for him.
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post #103 of 241 (permalink) Old 01-29-2014, 11:17 AM Thread Starter
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Re: Kenji's journey

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Have you considered yoga as part of Kenji's regimen? I haven't seen any studies on it with ASD or kids with other sensory integration problems, but it might be something to consider. In particular, I'm thinking that it could be part of his toolbox to self-soothe. Ideas like connecting body to breath when he's anxious. I've even read about people that will use yoga to cue body responses to stress. Not that they break out into Tree Pose when deadlines loom or anything, but they find grounding and focus by say, putting their feet at the same angles they do for Warrior Pose before speaking in public.

Given that Kenji is used to physical outlets for anxiety and stress already, it might be an interesting tool for him.
We enrolled him in an after school yoga class in the 5th grade. He was not mature enough at the time to catch on, but worth trying again.

Thank you
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post #104 of 241 (permalink) Old 01-29-2014, 11:37 AM
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Re: Kenji's journey

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We enrolled him in an after school yoga class in the 5th grade. He was not mature enough at the time to catch on, but worth trying again.

Thank you
He might like the Vinyasa Flow style better--lots of motion instead of the quieter Hatha styles. Sadie Nardini is pretty cool--she has on occasion used Bon Jovi lyrics as meditations Might be a little more relatable......
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post #105 of 241 (permalink) Old 01-29-2014, 01:37 PM Thread Starter
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Re: Kenji's journey

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He might like the Vinyasa Flow style better--lots of motion instead of the quieter Hatha styles. Sadie Nardini is pretty cool--she has on occasion used Bon Jovi lyrics as meditations Might be a little more relatable......
I will see if there are classes available here. Thank you very much for the information.
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