I was diagnosed with spinocerebellera ataxia a couple years ago. It's not so noticeable yet...but will be down the road. It's a pretty serious disorder, no cure or treatment. When it begins it affects mostly your balance, hand-eye-coordination, speech...but progresses into affecting almost everything.... your can't walk anymore, barely be able to talk if at all, you'll have to eat with a weighted spoon...if you can still eat without being spoon fed.
It affects your cerebellum, brainstem,spinal cord, and muscles.
Right now, I'm healthy, go the gym everyday and in great shape, attractive, well liked.
I know that the right thing to do is to tell the one your dating, about something so serious. I'm not dating anyone right now. What if I meet someone I want to be serious with...I don't know how to tell them, when to tell them... I mean even if we're not serious (at this situation was reversed and I fell for a guy) and he didn't tell me until a year into or until we're serious...I might feel like he waited till I was hooked but I think I would also understand.
Another huge thing...let's say I meet someone, tell them, they don't care...they love me that much they'll work through it with me... great.. another bombshell. If we have children there is a 50/50 chance of this passing on...even if they don't physically have the disorder they can carry the gene to pass it on to their children.
There is the option for IVF. But I probably won't be able to physically carry a child (at risk for falling more so then a 'normal" woman). so they'd ALSO have to be open to IVF and a surrogate mother or adoption. There is also a treatment which can remove only this mutated gene but it is controversial and expensive....another bombshell...
I'm only 26, everyone deserves a chance at love. But I feel, who will love me know...at least the may until I tell them. I understand this would be a bombshell for anyone and would understand if they didn't stick around.
Short term or uncommited relationships might work for a little bit...but I want to be married, have children, be happy and live a full life with the whole white picket fence, 2.5kids, and aloving husband who adores me despite this fact. It feels so hopeless...if the person you were with know, man or woman, came to you and told you they had this what would you do? Be honest.
ps- there is no cure or treatment (as of now but there are advances in research...such as stem cell research but that is still new and unavailable). I can only live a healthy lifestyle and take vitamins and supplements.