Cee Paul

Anyone else that suffers from this or knows someone who does pleaaaase - let's talk, because I was diagnosed with it 3 years ago and have been able to cope and live with it but the first year or so nearly drove me crazy. It is considered to be rare but is quickly becoming a disease that a lot of people have - and some didn't even know it.

https://www.google.com/url?url=http:...vBJ2kG3hAx7jwg

Almostrecovered

my brother was diagnosed a year ago, he had vertigo that wouldn't go away

only had one "flare up" since his diagnosis

I'm no stranger to auto-immune disorders, my wife has MS

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Newbies please read this
My story

Cee Paul

There are different levels and different symptoms associated with this horrible ear disease, and these are the ones that I ended up with so far:

- tinitus/ringing in the ears that comes and goes

- 40% hearing loss in my right ear

- sensitivity to loud sounds and pitches(I receive it 3 times worse than the normal person)

- slight vertigo that comes and goes every few months.

Coffee Amore

I have a relative diagnosed with it but he's much older than you. He got diagnosed in his 60s. He was having vertigo off and on for years. For a while, doctors thought it was Benign Positional Vertigo (I think that was the name..). However, it turned out to be Menieres. Finally, he stopped driving altogether because he didn't know what a dizzy spell would come over him. It happened randomly. His condition is progressive but he travels the world, exercises, has a life. His wife drives him places but other than that his condition seems more of an inconvenience to him than anything else.

TBT

You sure don't want to have a major flare up of the vertigo.I was basically incapacitated for 2 weeks and even laying down any movement was apt to set it off.

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"Truth is like the sun,you can shut it out for a time,but it ain't going away"-Elvis

F-102

The late astronaut Al Shepard was diagnosed with it and grounded, being told he would never fly in space again, but he found a doctor who performed a radical (for the time) surgical procedure, and he went on to command Apollo 14 and walked on the moon (even hitting golf balls up there!).

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"All of us get lost in the darkness...
...Dreamers learn to steer by the stars"

Cee Paul

I have been keeping mine under control pretty well with a supplement called "Lipo-flavonoid" and I take 4 of those a day everyday, and I also sleep with two pillows under my head propping me up so that I don't get a vertigo flare up. I was told that by the time I was in my late 50's to early 60's that I will be totally deaf in that right ear, because of the fact that it's very slowly destroying itself from the inside out with a low constant ring I can no longer hear.

Gaia

Now that sucks. :/
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TBT

LOL For sure Gaia! I thought it would never end.Hope you and gate are doing better.

__________________
"Truth is like the sun,you can shut it out for a time,but it ain't going away"-Elvis

Gaia

Thanks TBT
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cloudwithleggs

i know what it is like to have balance issues and feeling really dizzy with it now comes nausea, so feel your pain maybe a little, i have hashi's autoimmune thyroid disease, and my adrenal's are on there way out, had adrenal antibodies, my endo said i would more than likely develop addisons in the next ten years that was over 7 years ago.